Yeah I have EDS and multiple conditions that usually come with it. It’s genetic but got diagnosed late 20s. It’s very much something I have to fight to get help for, however, at least it’s a diagnosis that is never questioned (at least for me), I just hate people that aren’t doctors claiming people are making up they have the condition online, which is why I’ve kicked off before . I’m believed now I have the diagnosis, but I can only imagine what it’s like to actually get a diagnosis of fibromyalgia and to still be told by professionals it’s just in your head.
Sadly, the likes of Ruby and so many other things like Drs who enrolled in the University of Google play a big part in that, but even when the `professionals` get it wrong, its bad. I thought I'd got the correct person thank god and my mind wasn't playing tricks on me x