Stephanie Vavron @stephanievavron

vavisavag

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Mar 11, 2024
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Not even watched her today since this morning. My mum got taken into hospital last night as she’s been blacking out for about a week now on and off , turns out it could be epilepsy and something to do with her heart so I’ve been up and down to Dundee today, meanwhile having no childcare for my children, a house to sort , dinner to do and a million things to do for Christmas coming. I’m actually due a breakdown , but us as real mums get on with it.
 

vavisavag

Member
Mar 11, 2024
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This hits me hard 😞❤️

I was the same, your not alone in that 🫶🏻 I felt embarrassed and ashamed so I would write it then say oh but I can do this or that, I mean who wants to write I don’t remember the last time I washed or brushed my hair.?

It’s so poor the way it’s all done, I wish all the needed was a professional to give them the ok to move forward

I’m sorry you went through that 😞❤️❤️

I don’t know why I’m sitting here crying 😭😞

Thank you… you probably wrote that not even knowing the impact it was going to have, the validation because that’s me, if you saw me out you would think god she’s so bubbly and all put together, she’s the loudest in the room, she’s the one everyone laughs with and the one everyone loves to meet up with, but really it’s a big fake act, I’m the same as you, thank you for being so open, it made me feel less alone 🥹

❤️
This even made me tear up, how lovely all us trolls can be, what beautiful humans 🩷
 

medusalou

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Aug 26, 2024
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Not even watched her today since this morning. My mum got taken into hospital last night as she’s been blacking out for about a week now on and off , turns out it could be epilepsy and something to do with her heart so I’ve been up and down to Dundee today, meanwhile having no childcare for my children, a house to sort , dinner to do and a million things to do for Christmas coming. I’m actually due a breakdown , but us as real mums get on with it.
Your mum is in one of the best hospitals in the country( if she is where I think she is)and under the best neurologists ( I am assuming here ,so forgive me if I have the wrong speciality for the investigation of epilepsy)Scotland has. I am under them also.and their care is second to none.she is incredibly unlucky to have two things going on there,a family member is also under cardiology there and again,the care has been amazing. Fingers crossed she gets some answers soon. You are definitely a “real” mum ,doing what’s needed.x
 

vavisavag

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Mar 11, 2024
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Your mum is in one of the best hospitals in the country( if she is where I think she is)and under the best neurologists ( I am assuming here ,so forgive me if I have the wrong speciality for the investigation of epilepsy)Scotland has. I am under them also.and their care is second to none.she is incredibly unlucky to have two things going on there,a family member is also under cardiology there and again,the care has been amazing. Fingers crossed she gets some answers soon. You are definitely a “real” mum ,doing what’s needed.x
Starts with an N? This gives me a little peace, they aren’t letting her out until they have answers and a treatment plan in place. She does so much for everyone , she needs to bloody slow down! All she could say was sorry because she couldn’t pick up my children from school/ nursery today as if she’s not in so much pain and worry. Puts everything into perspective
 
May 24, 2024
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The moon
Not even watched her today since this morning. My mum got taken into hospital last night as she’s been blacking out for about a week now on and off , turns out it could be epilepsy and something to do with her heart so I’ve been up and down to Dundee today, meanwhile having no childcare for my children, a house to sort , dinner to do and a million things to do for Christmas coming. I’m actually due a breakdown , but us as real mums get on with it.
So sorry honey. Seems to be happening all around you just now ❤️
Sending you a virtual hug. Xxx
 
Mar 8, 2024
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Not even watched her today since this morning. My mum got taken into hospital last night as she’s been blacking out for about a week now on and off , turns out it could be epilepsy and something to do with her heart so I’ve been up and down to Dundee today, meanwhile having no childcare for my children, a house to sort , dinner to do and a million things to do for Christmas coming. I’m actually due a breakdown , but us as real mums get on with it.
I’m so sorry to hear this
 

medusalou

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Aug 26, 2024
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Sorry you had to, too ❤️
It’s degrading having to fill it in. Friends going through the same got theirs accepted but I had too much pride to say I needed help getting washed, and my meals were made for me.
I still always worked so almost felt like I was being dishonest by my disability needs but you can’t fake what I went through. Well… some absolute wrong’uns do!!!!!!

If you knew me or seen me you’d not think I’d have gone through what I have, especially someone so in to fitness and health.
Takes a lot to admit you’re struggling when you are someone who everyone usually depends on.

I hope you have all the help you need now, and continue to get if you ever get reassessed! ❤️
Was it @medusalou that said it’s not a charity, it’s a right?

That struck a cord for me 🙏🏼
It’s one of the hardest thing to accept,that we need a bit of help.
And we make adjustments and accommodations unconsciously,to make things easier for ourselves.and then that becomes our normal.it can be a shock to realise that actually other people don’t have to do this.and their normal is not ours.
In the same way that we all adapt to our children’s difficulties. The realisation that the gulf between what is regular behaviour for a child ,and our own child’s behaviours, gets bigger as time goes by.
The other thing to note, for anyone who is going to make a claim,is that while the questions may ask “what help do you need?” It shouldnt be interpreted as “ what help do you get?” The two should not be confused.
The questions are really meaning “what help do you need even if you do not get this help?”
In a perfect world of course we would all get the help we need.but just because we don’t get the help,does not mean we don’t need it.
Again I am off on a rant ,but this is my biggest annoyance.and I see it all the time.
Receiving a disability benefit allows recipients to live a life where there are more options to do what they want to do. The disabled should not be living as second class citizens because they are disabled.the disabled should not be left on the breadline because of disability.
disability does not equal workshy.
but the opportunities to earn more in wages might not be so easy for a person with any sort of disability. The benefits hopefully level the playing field a bit.
So anyone out there thinking that the disabled are living the life of riley,I would ask them, how do they think the disabled should live? In poverty? In pain? Grateful for all they get?
I don’t think so.x
 
Mar 10, 2024
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united kingdom
Not even watched her today since this morning. My mum got taken into hospital last night as she’s been blacking out for about a week now on and off , turns out it could be epilepsy and something to do with her heart so I’ve been up and down to Dundee today, meanwhile having no childcare for my children, a house to sort , dinner to do and a million things to do for Christmas coming. I’m actually due a breakdown , but us as real mums get on with it.

Aww my darling sending you so much love. I have crashed and burnt today but tomorrow is a new day. I really hope your mum is ok 🥺❤️🥺
 

medusalou

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Aug 26, 2024
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Starts with an N? This gives me a little peace, they aren’t letting her out until they have answers and a treatment plan in place. She does so much for everyone , she needs to bloody slow down! All she could say was sorry because she couldn’t pick up my children from school/ nursery today as if she’s not in so much pain and worry. Puts everything into perspective
That’s the one.
Because it’s a teaching hospital,I think that patients get really well looked after.
You can’t teach medical students how to read an MRI scan ( for example) without First referring the patient for a scan.so there’s no skimping on the tests needed. It’s serves a dual purpose. Treats the patient whilst teaching the students.
just keep putting one foot in front of the other for now.i hope you do have some support too though. sty stressful time for you without a doubt.x
 
Mar 8, 2024
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I have not got enough time to talk about these outfits and the boots. Every single option was horrendous! That’s granny cardy and those boots were by far the worst, she hasn’t got a clue. Wish she would stop with bows in her hair. She resembles a who.. was only thinking this the other day.. her Cindy Lou idea is appropriate..
I was also distracted by that door way monstrosity.. is it two Christmas trees?! That’s why it comes off the wall?! And they have Christmas tree skirts around them? It looks a fing show.
 

medusalou

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Aug 26, 2024
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I did appeal and it was rejected, I was told because I could recount dates (trust me these dates you’d never ever forget, and I also had paper work beside me) and could hold my job I didn’t need any help.
Once that was rejected I just thought you know what do it, I’ve got enough on my hands.
They had me do a teams call, was some process.
Second time round I described my worst day in detail and no further evidence was needed.
First claim was 2022, I didn’t know I was entitled to anything as I worked.
Second one this year.
I’ve to be reassessed next year, which already gives me anxiety 😂

This has been so informative 🙏🏼
Your rant is very much appreciated 😂
If you are in Scotland then the reassessment procedure will be new and untested for claimants. As next year is probably as soon as these claims will be looked at. So hopefully they are still treating us as well as I think they have this year. It might be a simple form or phone call .we can only hope xx
 
May 24, 2024
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The moon
If you are in Scotland then the reassessment procedure will be new and untested for claimants. As next year is probably as soon as these claims will be looked at. So hopefully they are still treating us as well as I think they have this year. It might be a simple form or phone call .we can only hope xx
Yeah I’m in Bonnie Scotland 💙
I have another big surgery in January and on medication that gives me severe doms (two weeks out of three) and a temporary heart defect so I think I’ll probably very much be in the same position as I am.

Just really degrading having to explain your struggles in great detail. But I genuinely thought the people assigned to assess you would have some background when you tell them what it is.
First time round I did it online.
Second time I wrote it down in the application book.

Probably saw my tired writing and thought bloody hell someone help this poor woman 😂😂😂🫶
 
Mar 10, 2024
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What in the flying feroo were those outfits??? 'It's fashion' maybe in star trek! She has not got a clue! I hate her but at this point I want to say, let me hold your hand while I tell you......I don't even know which outfit was the worst! And the boots! Oh my god the boots!! 70s glam rock called vag, even they don't want those fing boots back! Oh I just can't with this!!