Delusive angie @delusive_angie10

Couldn't have said it better. I hide away, constant pain is draining and just because someone is appearing to look well doesn't mean they aren't in chronic pain. People would look at me and say I look well when the truth is I have 3 chronic illnesses and never have a day without pain.
People need to do better
Absolutely same! I look completely fine, nothing at all looks wrong with me, when in fact everything inside is wrong with me. It’s hard enough getting help and being heard through the NHS, but to have people making claims someone is faking even when that person provided valid evidence of the diagnoses they have…. So infuriating
 

Patty B

Member
Feb 28, 2024
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Walford London
I could still sleep at night if I nap. My alarm was set to 5.20am and I woke up 1 minute before alarm went off. I thought it was about 3am 😭😭😭
I live off naps but iv got my baby grandson for the next 2 days because my other ones going in hospital for an operation today so I need to stay awake during the day 😂
 
Do you have an auto immune condition? My wife was diagnosed with an auto immune condition when she was younger and since has had others added on and apparently it's more common than people think , almost like when one thing on the car goes everything else seems to go wrong x
No but the condition still falls under rheumatology as it’s a connective tissue disorder. It’s genetic and as you get older it just gets worse. It’s Ehlers-danlos syndrome, well that’s the genetic condition but as it affects every bit of your body you end up with a million other diagnoses as your connective tissues absolute dog s and nothing works right 😂😂 hope your wife is managing ok. Not nice at all ❤️❤️