R to @eduk19831: That's a good motto.
it's funny - when I was first ill it was more like intense fatigue - they thought I had ME/CFS for a while. The pain was secondary.
Nowadays it's pretty much just pain. But maybe that's because I have had to adapt - I sleep more + don't go out!
R to @eduk19831: That's pretty much what everybody I know who has one through it has said.
That our solutions are all different.
What's amazing though is when you meet other people how similar our journeys are. We definitely have the same illness. It's just we don't understand why!
R to @Wilderauthor: There must be, right? I get the feeling that some of them feel trapped. But it tends to happen at a very specific time in their lives. I can think of at least 5 cases just in people I know personally where this has happened at this time.
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